Sunday, May 1, 2011

I once was lost...

but I'm back. Well, back as much as I was here before, which isn't much. Too much cooking to do! Oh, and there's this whole thing called work, too.

Ok, world, I think I'm ready to admit it for posterity. In case you didn't figure it out, your favorite sarcastic celiac is preggo.

Yep. One month of my new diet and BAM!! Oops.

I stuck with the "SCD/GAPS/pas de nightshades diet" for about a month after I was expecting, then had to give it up. Why?

Because sometimes, meat makes a preggers person want to throw up. And broccoli has a distinctive flavor of Mr. Clean. (not kidding). There was something about chicken, especially dark meat, that smelled like rot.

Plus, there was one day when I just hadn't eaten enough, and I got a terrible migraine aura. Freaked me out entirely. It had been awhile since the last one (years), so I was wondering if I was having a stroke... luckily, I figured it out before rushing to the ER, but not til after scaring my husband to death. The carrots and an orange I'd eaten that afternoon just hadn't cut it.

So that's when I started eating bad things like pasta, potatoes, tomatoes, even some sugar. I still stuck to whole foods as much as possible. The first trimester was basically me fighting cravings for things that I was unwilling to chance. I did give in to the chocolate chip cookies at one point though. (See previous post)

We're working on week 23 at this point, just for a frame of reference. The cravings/aversions aren't as bad. Things seem to be going ok other than the residual fatigue. (That I was JUST starting to get rid of by doing my diet... sigh...).

So anyway, I may post meal ideas and what I'm eating at the moment. I'll warn you though, it may have nothing to do with GAPS/SCD, and it may include nightshades. In fact, cooked tomatoes don't seem to bother me too much, so I've been doing a LOT of pizza and pasta. With cheese.

Well, that's my story. I'm sticking to it. Have a great week!

SC

Friday, February 4, 2011

I'm still here

Fell off the face of the earth for a month or so, but for good reason. I'll fill you in on the details in the future...

Not really doing SCD/GAPS anymore, due to the good reason alluded to above. Trying to stay away from more processed stuff, but gave in a few times. The nice part is that whatever healing I achieved over the two months on SCD must have helped with some of the insults! I still get somewhat sick with new foods, but I can't always tell what to attribute it to. Kinda feel like I'm back at square one.

I'll stop being cryptic soon, I promise. BTW- French Meadow Bakery chocolate cookies are super. Kinda ripped my gut apart, but totally worth it. Major potato starch-ness on my previously nightshade free guts?

Sunday, January 9, 2011

What am I eating??

List of foods I eat (don't worry, it's short):
  • Meat/Seafood: Pastured chicken, grass-fed beef, wild salmon, tilapia, shrimp (no preservatives, so have to peel/devein myself)
  • Non-starchy vegetables: asparagus, green beans, broccoli, cauliflower, cabbage, spring mix, spinach
  • Fruit: apples, very ripe bananas, kiwi, pomegranate, mandarins, berries
  • Yogurt: 24-hour SCD yogurt, made with starter and whole milk (usually organic, but really no proven benefit to organic milk... may try raw milk sometime although would kill the bugs in it anyway with yogurt)
  • Coffee and tea: as previously mentioned, trying to get off of these.
List of things I take:
  • Florastor. Haven't tried other brands yet. S. boulardii does really seem to help though, more than anything else I've tried so far, although that isn't saying much.
  • Occasional multivitamin from Freeda
  • Occasional vitamin D 5000 units from Freeda, taken with a meal to help with absorption. FYI- I read a study not long ago about levels improving significantly just by changing the administration time to the largest or fattiest meal of the day. My 25-OH level was 26 at last check, so borderline low or low depending on who you talk to.
  • That's really it. I don't do drugs. Even my last few headaches, I've just toughed out. Which sucks beyond belief, but I just didn't want to screw up my gut healing.
Meal options:
  • Typically- a piece of fish and a vegetable
  • Cabbage wraps- either make these into tacos with ground beef, or with shredded jerk chicken, either one dipped in a yogurt/lime juice sauce
  • Chicken soup of some sort
"Recipes":

I throw a whole chicken in the crock pot. I let it cook for awhile, depending on when I put it in. I then take the meat off and save it, throwing the carcass back into the pot with the juicy goodness. I add an onion, some carrots and celery, garlic, a bay leaf, some rosemary, 1 tsp salt. Fill it up to the top with water. I then put it on high and let it simmer for 4-6 hours, it takes a while to get to a simmer. Strain, and make soup! Or just sip for breakfast! (Or poach an egg in it if you are lucky enough to eat eggs). I do this about once a week. Chickens are expensive!

Marinate some shrimp in EVOO, lemon juice, garlic, shallot, and some spices (usu. chili powder, cumin, salt, a touch of honey, or use the fish grill/broil spice mix) along with some cooked spaghetti squash. Saute until shrimp are cooked through.

Use lettuce leaves or cabbage (put into boiling water for a minute or so to soften) as wraps for shredded chicken or ground beef. Dip in plain yogurt as described above. Not too bad. Messy though.

That's about it for now. Getting tired of it after two months on the diet already... but trying to stick it out. Definitely have noticed an improvement.

Thursday, December 30, 2010

Defining the problem

That's what I've been trying to do for 3.5 years now- define the problem and fix it. I feel like I'm getting closer, but nowhere near hope of being healthy. Here are the things I can't tolerate right now and theories as to why.

Just to clarify- I don't have GI issues anymore. Any residual issues have cleared up since starting SCD. In fact, some days I try to have a little more fiber to help things along now, if you're picking up what I'm laying down... never really bothered me too much GI-wise, but it is still nice to not have the occasional issues!

On with the list:

1. Nuts

Have tried these a few times since they are such a staple on the SCD. No dice. Tried soaking and dehydrating. Same story. Like I alluded to in my previous post, almonds in super small amounts make me so tired I can barely stand it. I read this page on the Celiac Sprue Association website. It seems pretty well-established that Celiacs have problems with yeast and mold.

No flippin' kidding. It was good to see this in print from a relatively reliable source. Now the big question is how to fix the problem.

2. Eggs

This one hurts. Another SCD staple. Had been without them for a few weeks and I guess was feeling brave one day. I get pastured chicken from a local producer, and I also got my eggs from them. Didn't seem to go too bad at first. Soon after, they experienced a shortage of their regular eggs and the only ones I could get were soy-free.

So basically what that means, and what was confirmed with the chicken people last week, is that the soy-free feed contains more oats and maybe even wheat. Super fail. I had thought of this, but tried to ignore it. I don't know why I do that, my intentional ignorance only ends up hurting me in the end!!

Anyway, maybe sometime I will see if I can find eggs with GF feed. Seems crazy, but would be interesting since soooo many of us have issues with eggs. Would also be more careful with starting with small amounts of yolk and moving up from there.

3. Cheese, vinegar, and alcohol

Basically, same idea as the whole mold/yeast thing. I have known for quite awhile that these products caused severe reactions. I was always trying to figure out if it was actually gluten, or just a reaction to the food itself.

When I came across this article, I found it very interesting!! To oversimplify, there are amino acid sequences in the cell wall of candida albicans that correlate to sequences in gliadin protein. Hence, the authors postulate that there could be a relationship between candida and Celiac. They, of course, suggest further exploration of this topic, but I can't find anything more recent than the article published in 2003.

I feel like I could have a lot more to say on this topic, but I don't want to go on and on about something I have very little evidence to prove. It sounds like I have classic candida-type symptoms. Severe fatigue, flushing, worse brain fog, skin rash, intense hunger, headaches, memory issues, etc. All are worse with yeasty or moldy foods. Fail.

4. Nightshades

Not all nightshades are SCD legal. But even the legal ones I'm not doing. I would feel horrible after eating potatoes (heart pounding, dizzy, esophageal spasm, other various weird stuff), I also was repulsed by the thought of tomatoes (esp. raw) when I used to like them. Trusting the body on this one. Never ate eggplant anyway.

I do still use spices derived from peppers. I FINALLY found some spices I at least seem to tolerate. Great place, not bad prices if you order enough to get free shipping. Not the most convenient, but I love their spice blends. Try some poultry seasoning blend rubbed under the skin of a chicken in the Crock Pot, stuff it with some onions and an orange. I also use a lot of the fish grill and broil on some cheap-o tilapia. Yum!!


Ok, now the big questions are: how long can I maintain my diet without these SCD-legal options? And possibly having to cut out tea and coffee in the middle of the butt-freezing winter?! I don't know. I've only recently started craving "normal" food again, and it's getting more depressing to fight every day. It's not an issue of willpower, more of attitude. I'm going to be a very chilly grouch without my morning decaf. Maybe we'll start that part next week... Might have to try to cope with some hot water in the AM.

I've read that caffeine and certain substances in tea and coffee kill off good bacteria and promotes candida. Extra Fail.

I'll let you know how it goes.

Saturday, December 18, 2010

Long overdue update

SCD since November 1st, have tried a few things on and off. Here is my current list:

NO:
  • nightshades (except in spices)
  • eggs (even free-range, organic feed, not GF feed though... has some oats, possibly wheat)
  • nuts (had a bite of soaked, dehydrated almonds on Thursday, promptly took a 2-hour nap)
  • vinegar
  • cheese
  • alcohol
WITH:
  • tea (as of this week, from the girl who roasts my coffee)
  • coffee (mostly decaf now, but I'm afraid she may have accidentally given me full caff this week... crazy hungry and felt weird for past 3 days!)
Sooo... the big question is.... am I getting anywhere?

Yes and no. Modest ups, somewhat less dramatic downs. Some days I have hope. Some days, I feel like I've been hanging out so much at Square One that I should consider redecorating.

I've identified issues beyond the simple flora imbalance. Well, it all obviously relates, but I have a serious mold/yeast issues that I only recently identified more clearly. Getting my bacterial flora back in balance will only help get that back in balance.

Still working on figuring out exactly how to "break the vicious cycle" since almost 2 months trying to do SCD and slowly introduce SCD-legal stuff hasn't really done a whole stinkin' lot. (and I realize it will take time, thank you very much for the reminder)

So many things to talk about... things I want to cover here over the next few weeks:
  • Foods/things I can't tolerate, and theories/info as to why
  • Probiotics (product choice is confusing as heck, even from a pharmacist's perspective)
  • Things I actually can eat!
  • Coping with having NO TIME to do anything but work and cook (hence, poor blogging follow-up skills)
  • Any new or interesting connections/information/articles I happen to find
Apology for the multiple uses of parentheses. (I seem to like adding comments as afterthoughts)

Here's to moving forward! Maybe I'll even get funky and try adding some pictures to liven things up a bit :)

Monday, November 8, 2010

A New Approach

I thought that I had read just about everything about Celiac Disease. What I didn't know was that my health problems went beyond our Western medicine knowledge of CD. Well, I guess you could say that I did know that deep down, but I didn't know where to even start with that dilemma.

I finally decided to start looking into more "alternative" answers to my symptoms, since the gluten-free thing just wasn't cutting it. The more research I did, the more different aspects of my symptoms seemed to make sense.

The first issue I looked into was Candida. I only knew of it in the context of severe infections, sepsis, etc., or the ever-popular vaginal infection. I know how to treat that. Makes sense to my drug-oriented mind. The remedies, though, seemed pretty far out. No one would tell you exactly what was in the "Super Duper Awesome Candida Remedy" for 3 easy payments of $49.95... not only am I a cheapskate, but also a cheapskate pharmacist who will never take anything she doesn't know what it is and how it works. So that option was out, but I also know there had to be something more.

Enter the Specific Carbohydrate Diet. I started looking into this after being on a probiotic that seemed to help but certainly wasn't the entire answer (saccharomyces boulardii). Pretty extensively researched and published, I might add, especially for an OTC supplement. Sweet.

Anyway, the SCD. Much of this made sense. I was, however, quite concerned that the most recent study cited in Elaine Gottschall's book Breaking the Vicious Cycle (the "revised" version) was from 1992. I know I'm in a vicious cycle, that much is obvious!! But I kept thinking... there has got to be more we have learned in that timeframe... in fact, some of the most robust and widely accepted data on the benefits of probiotics have been published since then. Not sure what to think at this point, but open to trying just about anything. How much more restrictive can it be beyond what I'm already doing?!

During this time is when I also figured out the nightshade problem. Ugh, don't get me started on how I tried to avoid this conclusion for a looooong time. The thought of trying SCD AND no nightshades?? Crazy.

I happened upon a website that discussed the GAPS diet (Gut And Psychology Syndrome). It is basically SCD on steroids. (Or not on steroids, since it may help with IBD... heh heh heh...)

It was developed by an actual MD, Natasha Campbell McBride to help with her son's autism. makes sense similar to SCD. Actually, it is almost hard to distinguish it from SCD. It is somewhat more modern of a program. So basically it is what I was looking for, someone took the SCD and continued running with it.

The issue with GAPS are some of the things it wants you to do on the intro diet, like raw egg yolks. I'm sorry, but I just can't do that. Not to mention that I wasn't able to tolerate eggs a few weeks ago. Maybe someday, I will try eggs again...

SO: what am I not eating now?? Gluten free, grain free, soy free, legume free, nightshade free, dairy free (except for homemade SCD yogurt), sugar free, egg free, nut free.

SO: what am I actually eating?? Today, I had yogurt and pomegranate, coffee with honey, chicken and cabbage soup, beef roast with carrots, tilapia with zucchini noodle pesto (and parm... still waiting on the verdict for that one...), and apple cider.

Sounds like a lot of work, huh? It has been. This is only my second week doing my version of SCD/GAPS. But honestly, it is not much harder than the great lengths I was going to before. Now, I'm just hoping I have something to show for it and start healing!!

I'm committed for a month. Probably not enough time to evaluate, but that's all I can manage at the moment. I'll keep you posted. Pun intended.

Wednesday, September 8, 2010

Factual Update

update for the food list:

No more yogurt, no more chocolate chips. Too many variables, and the yogurt seemed to be hit or miss. Sad, because it was an easy source of protein.

No more paper towels from work. Made a pretty distinct connection. Didn't know there could be gluten in paper towels. Now I know.

Tried eggs for awhile. Seemed ok. Got another batch of them from a different store. Now I'm not sure. Back off of them.

Tried almonds, pecans, and raw sunflower seeds from Nuts Online. Seemed ok, but again, still having some problems. Back off them til I figure it out.

My dishwasher (4 months old) is making funny noises. More loud and grinding than funny, I guess, especially considering my dependence on it. I've been advised not to use it until the repair guy comes Friday. Sigh.

Good news, I started getting boxes of organic produce again. I also keep hoping that there is a chicken in my future.... if we can ever get a time coordinated to pick one up from our friend who raises chickens. Been trying for almost two months now.

Also tried the probiotic yeast Saccharomyces boulardii. Very interesting that there is a lot of literature supporting its use in various diseases, including inflammatory bowel disease (mostly UC). Nothing with Celiac specifically, but it is worth a shot, especially since I've been semi buying into the whole candida theory of late. I'm looking for another GF product for this, as buying Florastor is kicking my wallet in the gut. It seems to be helping, but I'm never sure due to the many variables I'm dealing with. Funny how I just happened across this stuff, I had never heard of it.

That's pretty much the update. I hope, someday, when I'm not spending every waking moment cooking boring, bland food, that I will post some fun things. Like ideas or recipes. But right now, I'm just working on getting better.